Thursday, May 28, 2015

we have a date

Ethan has improved a bit this past week since he increased his inhaler! He has had three episodes since the increase, however they have been much milder than before thankfully!

I spoke back and forth with Dr. G (cardiology) about Ethan's upcoming cath. They wanted to schedule him as soon as possible, but with the new cath doc's schedule and the fact that she is going out of town we wouldn't be able to get in until the last week of June. The problem with that is our family is going out of town a couple days later. I really didn't want to have a problem in the hospital and have to miss the trip. And I also knew that even if things went perfectly in the hospital, Ethan would be too sore and still recovering to travel right after! I convinced them to let us do it when we return. They were able to get us on the schedule for July 8. Ethan is the first and only case of the day. They plan this deliberately since he is such a difficult case and they expect it to be a long procedure (as usual). They plan to go in and check out his stents and any suspect veins to make sure nothing is clotting off or narrowing. If they see a problem they will try to open it up with ballooning or stents. Since his groin access has been gone for years due to too many caths, they are expecting to use his neck access again. We pray this goes well. If not, then we will be looking at liver access. We have not done this yet, but we have been warned to have that as a possibility.

Please pray for Ethan's health and for a successful and smooth procedure, but also for his anxiety and peace about it. He is very scared and does not want to go through this again!



I saw that CHOP helped release a new Berenstain Bears book called Hospital Friends. Ethan absolutely loves Berenstain Bears, so once he reacted so negatively finding out about the cath I ordered it to cheer him up. He was very excited!



Last weekend we were able to celebrate the baby shower for my brother-in-law and his girlfriend! They are expecting a little boy soon and we are all very excited!





We had another exciting event happen this week (this one NOT good). Ethan and Callie were playing cops and Ethan's hands were cuffed behind his back. He stood up and fell forward. Since his hands were behind him, he wasn't able to brace himself and went face first into the floor. I instantly heard hysterical screams from both kids and raced into the room to find blood EVERYWHERE! Blood thinners make injuries so much worse! The kids were terrified from all the blood and it was a mess! I applied pressure for a while and finally got it to slow enough to calm down a bit after around 10 minutes. John came in to help hold pressure on his chin while I hunted down some steristrips. We were able to close his wound enough to where we felt comfortable that he would be okay. His chin and jaw by his ear hurt that first night, but then he felt better by the next morning so I was relieved. We definitely have a new rule in the house of only handcuffs in the front from now on!!




We have only 4 days left of school - and most of those are parties and field days! The kids are very excited to be at the end! :) I will make a post of their school achievements and end of year fun this week!

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