Pulmonology and birthdays

First we can start off with a medical update.

Ethan hasn't had the improvement we were hoping for after his cath. He is still tiring easily, sats are remaining in the low 60s and dropping to low 50s or lower when doing activity. We met with pulmonology on Tuesday. They have determined that his issues are not lung-related. It must still be a cardiac problem. We see Dr. G (cardiology) next Thursday, so it will be very interesting to hear what he thinks about this. We had really expected the cath to change things, so we'll see what he thinks we should do about everything. Pulmonology was concerned enough over his low sats that they sent cardio an email letting them know what's going on.

He's had multiple rounds of blood work since discharge!

He was so blue and exhausted after riding for only about 10 minutes!

We've been able to spend a lot of time in the pool since it's been so hot lately!

 

 

 

Ethan finished up his social and handwriting camps this week! He did a great job in them and has learned so much! His conversation skills have improved tremendously and as long as he takes his time and wants to put effort into it, his writing has improved so much too! The problem is going to be his desire and the fact that his teachers will not want him to take the time he needs to form his letters correctly. I have a feeling his old chicken scratch is going to reappear when school resumes!

We had to go to the eye doctor to have Callie's glasses fixed. While we waited Ethan had fun trying on some options LOL!

We also were able to celebrate both Callie and Ethan's birthdays! Ethan's actual birthday is not until this Sunday, but we celebrated a week early to have a combined party with Callie. :) The kids were inundated with gifts! They have been so busy playing with everything (lots of Legos and stuff) as well as money/gift cards to make multiple shopping trips already! Callie also found out that my sister is taking her to China this October! She is so excited!

Fiona was "helping" Callie eat her birthday donuts

Happy 12th birthday Callie!

Delicious Minion cupcakes!

I was finally able to hold my newest nephew, Kino! :)

Callie and Ethan with their cupcakes

Kino snuggles

Callie and Ethan with their Cavs themed cake!

Minecraft sword

Map with a heart on China

I just wanted to send out this quick update about this past week. I will update again next week with the news from cardiology. Please keep us in your prayers. We have a lot going on right now (just sold our house and working on the start of our new house build). Please keep Ethan in your prayers. He hates wearing oxygen even though I'm sure it would make him feel so much better throughout the day. Please pray that we can figure out what's going on with his body and find a good and easy way to help him. I'll keep you all updated!

Ethan falls asleep on me often while I'm working!

 

 

John, Fiona and Moose