Saturday, November 16, 2013

The plan, fall fun, and school reports!

Things have gotten pretty busy here lately - and will get even busier these next two weeks!

First, let's start with Ethan's parent-teacher conference. I went in a week and a half ago for his conference. It went better than expected at least! She said Ethan is behaving wonderfully in class. He is one of the best behaved kids there actually! This is mainly because he won't talk to anyone so he never gets in trouble for goofing around with the other kids and stuff. He just goes into the classroom, puts his things away, and sits down to wait for class to start. He still refuses to socialize except for one incident where he got into a verbal argument with a girl over where to put a toy away. The teacher was shocked! She said she was actually thinking "yay, go Ethan!" because he was standing up for himself with the another kid! Granted, I would much rather his only socialization is NOT in an argument, but I guess it's better than nothing. :/

Academically he's still struggling in some areas. He is doing well with his letter, letter sounds, and number recognition, but struggles with actually building words and putting numbers in correct order. His interventional specialist comes in and works with him to help on these skills. Hopefully we can see more improvement because of this. One thing she brought up that he is top of the class at is his artwork for journal time. Every day they are given a prompt to draw a picture about. She is so impressed with his drawings and uses them as her example to the class each day. She claims she holds up his journal and says "see class, this is what I want everyone's journals to look like!" :) YAY! She took his off the shelf and showed me some of his work. One example was the prompt about a healthy snack. Most kids drew a couple random snacks. Ethan drew a complete fruit bowl with bananas, grapes, oranges, apples, etc! And it actually was really good! Another was about trick or treating. He drew a paper bag with various candy pieces falling into it. There was so much detail in his drawings and he does a great job with it. You can tell he loves that part of the school day! He still chooses to draw by himself instead of play with the kids at recess, but he claims he's happy with that. I'm not going to push him to play, but hopefully during some colder days he will do something with the other kids during "inside recess".

Callie:
Callie thankfully is doing great in school again. This week she's going to turn in her science fair project, so thankfully that will be over and done with. I'm so relieved I don't have to worry about her academically! She loves school - especially the socialization part! It's kind of crazy how different these two kids are! :) She's also keeping busy with her girl scouts, basketball tryouts next weekend, and goalie soccer training. She loves it and is having fun, so that's a big relief. And hopefully it will really help her excel in goalie for spring season!

5th grade pictures!

She went to her orthodontist evaluation a week ago. They said the best plan is to wait until the rest of her permanent teeth come in before getting braces - she still has a lot of baby teeth. They asked if the way her teeth stick out bother her. If they did, we can do a round of braces now and then another round when her teeth come in. She said no, she was happy with her smile. :) I love her self-confidence! So we decided to wait. If she changes her mind later we can always return and see about doing something then.

She also saw her rheumatologist again. The appointment went well. Her ability to bend over still has not improved even after these months of stretching and Naproxen. The doctor checked her out and said there doesn't seem to be any joint swelling and her joint pain has gone away these past couple of months. :) We are going to stop taking the Naproxen to see if the pain returns or any swelling happens. Hopefully we can just stay off the pills because obviously we'd rather her not have to take it! She also needs to see a new orthopedist. Her scoliosis is still a big concern for the doctor, so she wants us to go see someone to  make sure there's nothing that needs to be done to improve it. It's not apparent at all when she's standing normally, but when she bends over it's very obvious. Hopefully the orthopedist can shed a little light into the situation and figure out something to help her.


We were able to spend a little bit of time outside enjoying the leaves this fall. We took a few pictures and played in the leaves. We gathered a huge pile together for the kids and dogs to jump in. They had a blast!






We also took a couple pictures around the backyard.






Ethan:
Medically...we finally have the plan! Dr. Golden called yesterday morning and said everything is scheduled for the CT scan on Monday morning at the Clinic. He will be sedated for it. Due to this he had to have a physical done within the past 30 days. Well, his last physical was 2 months ago so we had to get in to see someone to do it. His pediatrician couldn't see him on such short notice, so Dr. G said we could come down and see him instead. I picked up the kids from school a bit early and headed downtown for the checkup. Dr. G said his lungs sound great - YAY - so the new inhalers seem to be working well! He was very concerned about his face though. Ethan has a major problem with dry lips. Once they get dry he constantly licks them and makes them MUCH worse. He has been doing this for the past two weeks (even with me consistently putting creams and ointments on). Dr. G was concerned it was getting infected and didn't want to take any chances of having anesthesia cancel the scan on Monday. He called in a steroid cream for his face as well as an antibiotic cream just to make sure. Hopefully we can get this cleared up for Monday!


He also has a very loose tooth that he is too scared to let us pull out. If it's still there on Monday, we will be removing that once he's asleep! :) They're going to do the scan on Monday, and once he's awake and feeling good we can go home. Then Thursday morning we will return for his cath. This is most likely going to be his biggest cath yet (if they stick with the current plan), so please keep us in your prayers for this week. Going under anesthesia twice in a week will be tough for him as well, so that's another concern. I will keep you all updated on how Monday goes. This scan will tell us for sure what the cath plan will be and how things are looking. Thanks for all the prayers and support - I'll post again on Monday about his scan!

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